Raising a child who is labeled by medical professionals as "failure to thrive", "developmentally delayed", and "medically involved" is exhausting and emotionally taxing. Don't get me wrong, I love my daughter and think she is amazing. Her smile lights up a room, she is very happy, and she tries harder than anybody I have ever met. But her care is exhausting.
Caroline receives five hours of Early Intervention therapy every week, she is followed by seven specialists, our insurance regularly denies payment of claims which means hours must be spent going through the appeals process, trying to feed her by mouth is a long and frustrating ordeal just as it to feed her using her feeding pump in public.
Caroline started standing on her own yesterday, today she started cruising furniture. I am so proud of her accomplishments because I know how hard she has to work to reach milestones that just come naturally to other children. Tonight, I want to celebrate Caroline's accomplishments and be her mom...tomorrow, I will return to being her care coordinator.
